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September is Hydrocephalus Awareness Month

This September, join us for Hydrocephalus Awareness Month (HAM) as we celebrate the voices, experiences, and journeys that make our community unique. This year’s theme, “What Hydrocephalus Means to Me” puts your stories at the heart of awareness.

Hydrocephalus means something different to everyone. It can be reflected in a scar, a shunt, a milestone reached, a difficult day overcome, a piece of art, a photograph, or a story that deserves to be heard. Throughout September, we’re inviting people with hydrocephalus, families, caregivers, and supporters to show the world what hydrocephalus means to them.

Each week, we’ll highlight a different part of the hydrocephalus journey—from creative expressions and personal stories to milestones and wins, scars, shunts, and scans. We’ll share community submissions alongside educational resources and facts that help others better understand the many ways hydrocephalus can impact a life.

Every story matters. Every journey is unique. Whether you share a photo, artwork, poem, personal reflection, milestone, or simply help spread the word, you can be part of making hydrocephalus more visible this September.

Follow along, share your story, and help us show the world: this is hydrocephalus.